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HunterSyndrome news

The Assistance Fund Establishes Financial Assistance Program for Patients with Hunter Syndrome


Business Wire (press release) - Sep 21, 2017
“It is with great enthusiasm that The Assistance Fund launches the Hunter Syndrome Financial Assistance Program to help eligible patients pay for their treatments for this disease,” said Mark P. McGreevy, President, The Assistance Fund. “Individuals ...
 

Development of idursulfase therapy for mucopolysaccharidosis type II (Hunter syndrome): the past, the present and ...


Dove Medical Press - Aug 24, 2017
Abstract: Mucopolysaccharidosis type II (MPS II; Hunter syndrome; OMIM 309900) is a rare, multisystemic, progressive lysosomal storage disease caused by deficient activity of the iduronate-2-sulfatase (I2S) enzyme. Accumulation of the ...
 

Help a young Alamedan


Alameda Sun - Sep 15, 2017
We are the Nguyen family of Bay Farm. Our two-year-old son was recently diagnosed with a fatal disease called Mucopolysaccharidosis II (MPS2), also known as Hunter Syndrome. MPS2 is a rare lysosomal storage disease affecting about 1 in 100,000 boys ...
 

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What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

What is Hunter syndrome? Also known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunter ...
 

First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, ...
 

What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme ...
 

Hunter Syndrome Awareness


Finding an underlying cause to your child's long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it'll also be a huge relief when ...