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HunterSyndrome news

Mother races against time to fund research trial for son's fatal disease


Today.com - Oct 25, 2017
When Melissa Hogan's son Case was 2, doctors diagnosed him with Hunter syndrome, a rare genetic disease with a terrible prognosis: children with Hunter syndrome gradually lose the ability to walk, talk and eat, and most die by their teen years. There ...
 

Family of 10-Year-Old Boy with Deadly Disease Races Against Time to Fund Trial for Other Kids: 'We're Not Giving Up'


PEOPLE.com - Oct 23, 2017
Case Hogan of Nashville, Tennessee, has Hunter syndrome, a rare and fatal genetic disorder that affects 400-500 people (mostly males) in the U.S. Most children are diagnosed between 18 months old and 4 years old, and the life expectancy of most ...
 

From York to North Carolina: A drive to survive deadly Hunter syndrome


York Daily Record/Sunday News - Oct 19, 2017
He was diagnosed with Hunter syndrome on his third birthday and began an observational study at UNC a couple of months later. As he officially started the trial the following summer, he was forced to spend a month in North Carolina to treat ...
 

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What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

What is Hunter syndrome? Also known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunter ...
 

What is Hunter Syndrome?


Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins ...
 

First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, ...
 

What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme ...