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Rafael Reitmayer father of child with Hunter Syndrome shares his experience

Rafael Reitmayer father of child with Hunter Syndrome shares his experience


Interview recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS.
 


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Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the Philippines, more than 200 Pinoys...
 

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Early Signs & Symptoms of Hunter Syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable after the first year of life....
 

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Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function. While science is advancing, gene...
 

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Hunter Syndrome Disease Progression in Adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly effect the patients life. This video...
 

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Overview of Hunter Syndrome


 

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2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

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Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

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Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare disease advocates to get involved in the...
 

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HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

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Kids with Hunter Syndrome to perform 'The Nutcracker'


Kaabang-abang na pagtatanghal ang inihahanda ang ABS-CBN Philharmonic Orchestra at ng Philippine Ballet Theatre ngayong papalapit na ang Pasko --- ang "The Nutcracker!" Mas espesyal din ito.
 

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Helping ENTs Diagnose Hunter Syndrome (MPS II)


Paediatric ENTs have a crucial role to play in the early diagnosis of mucopolysaccharidosis II (MPS II), or Hunter syndrome. Adenoidectomy/adenotonsillectomy with inguinal hernia are the two...
 

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hunter syndrome phil.


 

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Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donnell's full report: http://cbsn.ws/1zdkwQM.
 

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Additional Signs and Symptoms of Hunter Syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, joint stiffness and limited range...
 

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Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

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Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a pediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS II. This video is intended for...
 

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Hunter Syndrome in Focus - Moscow


This video is intended for Russian audiences. Watch a brief video about the Hunter in Focus awareness event in Russia.
 

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Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipetitions.com/petition/treat_hunter_syn...
 

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Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October 2007.
 

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The Role of Surgeons in Early Diagnosis of Hunter Syndrome (MPS II)


Surgeons may plan an important role in the early diagnosis of Hunter Syndrome (MPS II) and other rare metabolic diseases. Dr. Christina Lampe from the Department of Pediatric and Adolescent...
 

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AGT-182 and Hunter Syndrome


Steven L Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the treatment option AGT-182 that the company is developing for Hunter syndrome.
 

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hunter syndrome


 

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Will - Hunter Syndrome


Will has Hunter Syndrome.
 

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Mitina Sneshana , MPS, Hunter Syndrome Association, Russia


(In русский) (in Russian) Mitina was a participant in the European Conference on Rare Diseases (ECRD) Krakow 2010. Mitina is a member of the Hunter Syndrome Association in Russia.
 

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Hunter Syndrome


Dr. Odell Biology video project.
 

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Cristy Naul, mother of Cyrel, who has Hunter Syndrome


Interview at Tagaytay Highlands.
 

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Hunter Syndrome DeAnna Berar


 

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JSB Market Research: Hunter Syndrome Therapeutics


The industry analysis specialist, has released its new report, “Hunter Syndrome Therapeutics - Pipeline Assessment and Market Forecasts to 2019”. The report ...
 

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Hunter syndrome


 

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AIIMS ready to give free symptomatic treatment to Hunter Syndrome patient Arian


 

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Living with a rare, deadly Hunter syndrome 12 year old Arian's story


 

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Health Minister refers Hunter Syndrome patient Arian's case to AIIMS, assures all help


 

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Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and other MPS conditions. This was prior...
 




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