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Rafael Reitmayer father of child with Hunter Syndrome shares his experience

Rafael Reitmayer father of child with Hunter Syndrome shares his experience


Interview recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS.
 


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What is Hunter Syndrome? - Also Known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunter ...
 

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Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the ...
 

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Early Signs & Symptoms of Hunter Syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable ...
 

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Hunter Syndrome Disease Progression in Adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly ...
 

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First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, ...
 

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Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function.
 

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Breaking Barriers Hunter Syndrome Trial


http://breakingbarriershuntertrial.com/ Researchers are conducting a clinical trial of AGT-182, an investigational treatment for people with Hunter Syndrome aka ...
 

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Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare ...
 

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2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

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hunter syndrome phil.


 

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Hunter Syndrome


Low-Incidence Disability Report on Hunter Syndrome Class: EDSP 4063.
 

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Additional Signs and Symptoms of Hunter Syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short ...
 

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AGT-182 and Hunter Syndrome


Steven L Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the treatment option AGT-182 that the company is developing for Hunter ...
 

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Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah ...
 

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Understanding Hunter Syndrome (MPS II)


This short video is about Hunter syndrome, or mucopolysaccharidosis II (MPS II), a serious genetic disorder that primarily affects males. It interferes with the ...
 

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Will - Hunter Syndrome


Will has Hunter Syndrome.
 

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Kids with Hunter Syndrome to perform 'The Nutcracker'


Kaabang-abang na pagtatanghal ang inihahanda ang ABS-CBN Philharmonic Orchestra at ng Philippine Ballet Theatre ngayong papalapit na ang Pasko ...
 

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Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

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Overview of Hunter Syndrome


This video is a combination of other videos on Hunter Syndrome to give viewers an idea of what the disease is and the progress of finding a cure.
 

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Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

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Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October ...
 

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HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART ...
 

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Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: ...
 

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MPS-II (Hunter Syndrome) Zwillinge aus Weiden in der Oberpfalz


10.03.2012: Wieder vereint!*** ***2010: In den frühen Morgenstunden des 11.September 2010 schlief Jannic nach grossem und tapferem Kampf für immer ein.
 

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Hunter syndrome (Medical Condition)


Symptoms, risk factors and treatments of Hunter syndrome (Medical Condition) Hunter syndrome, or mucopolysaccharidosis II, is a lysosomal storage disease ...
 

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Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and ...
 

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Mitina Sneshana , MPS, Hunter Syndrome Association, Russia


(In русский) (in Russian) Mitina was a participant in the European Conference on Rare Diseases (ECRD) Krakow 2010. Mitina is a member of the Hunter ...
 

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AIIMS ready to give free symptomatic treatment to Hunter Syndrome patient Arian


 

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2020 Mucopolysaccharidosis II (MPS II) (Hunter Syndrome) Global Clinical Trials Market Analysis


Read more at http://www.rnrmarketresearch.com/mucopolysaccharidosis-ii-mps-ii-hunter-syndrome-global-clinical-trials-review-h2-2014-market-report.html ...
 

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Dr. Odell Biology video project.
 

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متلازمة هنتر Hunter syndrome


متلازمة هنتر مرض نادر وتكاليف علاجه باهظة جدا حتى أصبح الأمل بالشفاء مستحيلا الا بقدرة من الله عزوجل اللهم...
 

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Morbus Hunter diagnostizieren


Morbus Hunter diagnostizieren aus Sicht einer Fachärztin für Hals-Nasen-Ohrenheilkunde. Die folgenden Videos sind für Personen mit Wohnsitz in ...
 

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Teenager Suffering From Rare Harlequin Syndrome


Teenager Suffering From Rare Harlequin Syndrome SUBSCRIBE: http://bit.ly/Oc61Hj When people first meet teenager Hunter Steinitz, many believe she's been ...
 

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В фокусе – Синдром Хантера


Смотрите краткий видео о Хантер в фокусе случае повышения в России . Следующие видео утверждены для аудито...
 

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Understanding Hunter and Hurler Syndrome


Steven L. Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the pathophysiologies of Hunter and Hurler syndromes and how both ...
 




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