What's on the web on your pursuit, hobbies, interests and worries


<<< back to Hunter Syndrome main page
0 0

Rafael Reitmayer father of child with Hunter Syndrome shares his experience

Rafael Reitmayer father of child with Hunter Syndrome shares his experience


Interview recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS.
 


I'm from: United States, NJ (edit) and

I find this video ...

very exciting
very interesting
very mediocre
very boring




More Hunter Syndrome videos

4 0

What is Hunter Syndrome? - Also Known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunte...
 

9 0

Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in th...
 

11 0

Early Signs & Symptoms of Hunter Syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeab...
 

0 0

Hunter Syndrome Disease Progression in Adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly effect...
 

0 0

Overview of Hunter Syndrome


 

8 0

Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare disease a...
 

8 3

Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

3 0

Additional Signs and Symptoms of Hunter Syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, jo...
 

0 0

Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function....
 

0 0

2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

7 0

Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donne...
 

11 0

Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipeti...
 

0 0

Understanding Hunter Syndrome (MPS II)


This short video is about Hunter syndrome, or mucopolysaccharidosis II (MPS II), a serious genetic disorder that primarily affects males. It interferes with ...
 

0 0

Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a pediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS ...
 

4 0

Hunter Syndrome


Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious genetic disorder that primarily affects males (X-linked recessive). It interferes with th...
 

6 0

Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

0 0

Hunter Syndrome in Focus - Moscow


This video is intended for Russian audiences. Watch a brief video about the Hunter in Focus awareness event in Russia.
 

0 0

Helping ENTs Diagnose Hunter Syndrome (MPS II)


Paediatric ENTs have a crucial role to play in the early diagnosis of mucopolysaccharidosis II (MPS II), or Hunter syndrome. Adenoidectomy/adenotonsillectomy...
 

5 0

HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

1 0

Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October 2007.
 

6 0

The Role of Surgeons in Early Diagnosis of Hunter Syndrome (MPS II)


Surgeons may plan an important role in the early diagnosis of Hunter Syndrome (MPS II) and other rare metabolic diseases. Dr. Christina Lampe from the Depart...
 

12 0

Will - Hunter Syndrome


Will has Hunter Syndrome.
 

3 0

Mitina Sneshana , MPS, Hunter Syndrome Association, Russia


(In русский) (in Russian) Mitina was a participant in the European Conference on Rare Diseases (ECRD) Krakow 2010. Mitina is a member of the Hunter Syndrome ...
 

0 0

Hunter Syndrome


Dr. Odell Biology video project.
 

10 0

Synopsis | Hunter Syndrome - A Medical Dictionary, Bibliography, And Annotated Research Gui


THE SYNOPSIS OF YOUR FAVORITE BOOK =--- Where to buy this book? ISBN: 9780497005559 Book Synopsis of Hunter Syndrome - A Medical Dictionary, Bibliography...
 

0 0

Cristy Naul, mother of Cyrel, who has Hunter Syndrome


Interview at Tagaytay Highlands.
 

0 0

Hunter syndrome


 

11 0

Hunter Syndrome DeAnna Berar


 

9 0

AIIMS ready to give free symptomatic treatment to Hunter Syndrome patient Arian


 

10 3

JSB Market Research: Hunter Syndrome Therapeutics


The industry analysis specialist, has released its new report, “Hunter Syndrome Therapeutics - Pipeline Assessment and Market Forecasts to 2019”. The report ...
 

6 5

Living with a rare, deadly Hunter syndrome 12 year old Arian's story


 

5 0

Health Minister refers Hunter Syndrome patient Arian's case to AIIMS, assures all help


 

0 0

Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and oth...
 

8 0

Conoce a una familia de síndrome de Hunter en España.


Un reportaje con testimonios de familias y profesionales,dónde se explica que es y que hace la asociación MPS España. This video is intended for Spanish audi...
 

4 0

Morbus Hunter diagnostizieren - Dr. Christina Lampe


Diagnose des Morbus Hunter (auch Mukopolysaccharidose Typ II genannt) durch eine Facharzt der Kinder-Chirurgie This video is intended for German audiences.
 




<<< back to Hunter Syndrome main page