What's on the web on your pursuit, hobbies, interests and worries


<<< back to Hunter Syndrome main page
0 0

Rafael Reitmayer father of child with Hunter Syndrome shares his experience

Rafael Reitmayer father of child with Hunter Syndrome shares his experience


Interview recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS.
 


I'm from: United States, WA (edit) and

I find this video ...

very exciting
very interesting
very mediocre
very boring




More Hunter Syndrome videos

4 0

What is Hunter Syndrome? - Also Known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunte...
 

11 0

Early Signs & Symptoms of Hunter Syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeab...
 

3 0

Additional Signs and Symptoms of Hunter Syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, jo...
 

11 0

Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipeti...
 

12 0

Will - Hunter Syndrome


Will has Hunter Syndrome.
 

0 0

Understanding Hunter Syndrome (MPS II)


This short video is about Hunter syndrome, or mucopolysaccharidosis II (MPS II), a serious genetic disorder that primarily affects males. It interferes with ...
 

0 0

2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

5 0

HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

0 0

Hunter Syndrome Disease Progression in Adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly effect...
 

0 0

Hunter Syndrome in Focus - Moscow


This video is intended for Russian audiences. Watch a brief video about the Hunter in Focus awareness event in Russia.
 

4 0

Kids with Hunter Syndrome to perform 'The Nutcracker'


Kaabang-abang na pagtatanghal ang inihahanda ang ABS-CBN Philharmonic Orchestra at ng Philippine Ballet Theatre ngayong papalapit na ang Pasko --- ang "The N...
 

4 0

Hunter Syndrome


Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious genetic disorder that primarily affects males (X-linked recessive). It interferes with th...
 

0 0

Helping ENTs Diagnose Hunter Syndrome (MPS II)


Paediatric ENTs have a crucial role to play in the early diagnosis of mucopolysaccharidosis II (MPS II), or Hunter syndrome. Adenoidectomy/adenotonsillectomy...
 

6 0

Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

8 0

Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare disease a...
 

0 0

Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a pediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS ...
 

3 0

Mitina Sneshana , MPS, Hunter Syndrome Association, Russia


(In русский) (in Russian) Mitina was a participant in the European Conference on Rare Diseases (ECRD) Krakow 2010. Mitina is a member of the Hunter Syndrome ...
 

1 0

Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October 2007.
 

14 3

Mucopolysaccharidosis II Hunter Syndrome Disease Market to 2014


Complete Report is available @ http://www.marketoptimizer.org/mucopolysaccharidosis-ii-mps-ii-hunter-syndrome-global-clinical-trials-review-h1-2014.html . Re...
 

8 3

Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

9 0

Overview of Hunter Syndrome


This video is a combination of other videos on Hunter Syndrome to give viewers an idea of what the disease is and the progress of finding a cure.
 

0 0

Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and oth...
 

12 0

Morbus Hunter diagnostizieren


Morbus Hunter diagnostizieren aus Sicht einer Fachärztin für Hals-Nasen-Ohrenheilkunde. This video is intended for German audiences.
 

4 0

Morbus Hunter diagnostizieren - Dr. Christina Lampe


Diagnose des Morbus Hunter (auch Mukopolysaccharidose Typ II genannt) durch eine Facharzt der Kinder-Chirurgie This video is intended for German audiences.
 

2 0

Hunter's World Down syndrome Day Combo Video


Created For Hunter this 2014 World Down syndrome Day Celebration at Terry Fox Public School.
 

0 0

HSRC celebrates World Rare Disease Day - February 28


Hunter Syndrome Research Coalition celebrates World Rare Disease Day on February 28th by raising awareness of Hunter Syndrome and the challenges faced by fam...
 

14 4

World Down syndrome day 2014 with hunter delk


Help celebrate world Down syndrome day on March 21st and stop using the "R" word!!!
 

0 0

Kyle's Travels


I enjoy traveling and seeing new places. I've been to Maine, North Carolina, Arizona, Florida, Hawaii, and California. My grandparents live just outside of P...
 

3 0

VOODOO MEP |[.megamind./.syndrome.]| you're the hunter


WATCH IN //HD// PLEASE! ~0~0~0~ PFFFT for Sauda's MAGNIFICENT SLASH MEP. AND IF YOU HAVE NOT SUBBED THIS AMAZING VIDDER, PLEASE DO: http://www.youtube.com/us...
 

3 0

Grow Together - Kyle's Story


Kyle Somsen has a rare condition called Hunter's Syndrome. His therapy wasn't covered by his insurance, but he was able to continue his sessions at the Behav...
 

2 5

Simon Ibell - Advocate for Human Potential and Inspirational Speaker


A truly remarkable and inspirational individual, Simon Ibell is an advocate for Human Potential and a Role Model for Persons with Disabilities. Ibell's condi...
 

4 0

MPS (Mucopolysaccharidosis) Memorial - Innocent Angels


BEST VIEWED @ 1080p HD - CHANGE SETTINGS ABOVE *** This is a video done in support of children afflicted by a disease called MPS (Mucopolysaccharidosis) ...
 

0 0

Beat Syndrome - Hunting Panthers EP // Aquasound


Beat Syndrome - Hunting Panthers EP // Aquasound [LQDA0046] Genre: Tech-House,Deep House, Release Date: May 26 2011 Beatport: http://www.beatport.com/label/A...
 




<<< back to Hunter Syndrome main page