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Rafael Reitmayer father of child with Hunter Syndrome shares his experience

Rafael Reitmayer father of child with Hunter Syndrome shares his experience


Interview recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS.
 


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What is Hunter Syndrome? - Also Known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunte...
 

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Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipeti...
 

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Early Signs & Symptoms of Hunter Syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeab...
 

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Understanding Hunter Syndrome (MPS II)


This short video is about Hunter syndrome, or mucopolysaccharidosis II (MPS II), a serious genetic disorder that primarily affects males. It interferes with ...
 

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Will - Hunter Syndrome


Will has Hunter Syndrome.
 

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Additional Signs and Symptoms of Hunter Syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, jo...
 

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HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

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Living with a rare, deadly Hunter syndrome: 12-year-old Arian's story


In a small, one bedroom apartment on the outskirts of Kolkata, 35-year-old Debjani Chowdhury sits in front of a dusty computer trying to tweet. Her 12-year-o...
 

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2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

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AIIMS ready to give free symptomatic treatment to Hunter Syndrome patient Arian


Health minister Dr Harsh Vardhan met the parents of 12-year-old Arian after CNN-IBN along with change.org started a campaign to highlight his plight. The Hea...
 

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Father of Arian, who is suffering from Hunter Syndrome, to meet Dr Harshvardhan


The CNN-IBN-change.org campaign to save 12-year-old Arian has had an impact. And in not just the donations that have come toward this cause, but also now the...
 

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Health Minister refers Hunter Syndrome patient Arian's case to AIIMS, assures all help


In a step which could help save the life of 12-year-old Arian, suffering from the deadly Hunter Syndrome, Union Health Minister Dr Harsh Vardhan met the chil...
 

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Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare disease a...
 

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Helping ENTs Diagnose Hunter Syndrome (MPS II)


Paediatric ENTs have a crucial role to play in the early diagnosis of mucopolysaccharidosis II (MPS II), or Hunter syndrome. Adenoidectomy/adenotonsillectomy...
 

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Hunter Syndrome in Focus - Moscow


This video is intended for Russian audiences. Watch a brief video about the Hunter in Focus awareness event in Russia.
 

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Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a pediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS ...
 

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Hunter Syndrome Disease Progression in Adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly effect...
 

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Mucopolysaccharidosis II Hunter Syndrome Disease Market to 2014


Complete Report is available @ http://www.marketoptimizer.org/mucopolysaccharidosis-ii-mps-ii-hunter-syndrome-global-clinical-trials-review-h1-2014.html . Re...
 

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Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

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Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

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Mitina Sneshana , MPS, Hunter Syndrome Association, Russia


(In русский) (in Russian) Mitina was a participant in the European Conference on Rare Diseases (ECRD) Krakow 2010. Mitina is a member of the Hunter Syndrome ...
 

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Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October 2007.
 

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Overview of Hunter Syndrome


This video is a combination of other videos on Hunter Syndrome to give viewers an idea of what the disease is and the progress of finding a cure.
 

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Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and oth...
 

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Hunter Syndrome DeAnna Berar


 

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Teenager Suffering From Rare Harlequin Syndrome


Teenager Suffering From Rare Harlequin Syndrome SUBSCRIBE: http://bit.ly/Oc61Hj When people first meet teenager Hunter Steinitz, many believe she's been the ...
 

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Cristy Naul, mother of Cyrel, who has Hunter Syndrome


Interview at Tagaytay Highlands.
 

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Help pours in for 12-year-old Arian suffering from deadly Hunter syndrome, Rs 11 lakh raised


The CNN-IBN initiative in collaboration with change.org to help 12-year-old Arian, who is fighting a rare genetic disorder called hunter syndrome, is bringin...
 

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HSRC celebrates World Rare Disease Day - February 28


Hunter Syndrome Research Coalition celebrates World Rare Disease Day on February 28th by raising awareness of Hunter Syndrome and the challenges faced by fam...
 

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Help pours in for 12-year-old Arian suffering from deadly Hunter Syndrome


Help is pouring in for 12-year-old Arian who is suffering from a rare genetic disorder. After CNN-IBN launched an intuitive in partnership with Change.org, 1...
 

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Morbus Hunter diagnostizieren - Dr. Christina Lampe


Diagnose des Morbus Hunter (auch Mukopolysaccharidose Typ II genannt) durch eine Facharzt der Kinder-Chirurgie This video is intended for German audiences.
 

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Hunter in Focus


The Hunter in Focus exhibit is a Positive Exposure project sponsored by Shire HGT to raise awareness and acceptance of the rare condition Hunter Syndrome.
 

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Morbus Hunter diagnostizieren


Morbus Hunter diagnostizieren aus Sicht einer Fachärztin für Hals-Nasen-Ohrenheilkunde. This video is intended for German audiences.
 

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Kyle's Travels


I enjoy traveling and seeing new places. I've been to Maine, North Carolina, Arizona, Florida, Hawaii, and California. My grandparents live just outside of P...
 

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World Down syndrome day 2014 with hunter delk


Help celebrate world Down syndrome day on March 21st and stop using the "R" word!!!
 




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