What's on the web on your pursuit, hobbies, interests and worries


<<< back to Hunter Syndrome main page
0 0

Hunter Syndrome video



I'm from: United States, VA (edit) and

I find this video ...

very exciting
very interesting
very mediocre
very boring




More Hunter Syndrome videos

0 0

What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

0 0

What is Hunter Syndrome?


Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very...
 

1 2

What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme iduronate-2-sulfatase. The deficiency or absence...
 

0 0

Mission Possible: Vice Ganda surprises brothers with Hunter Syndrome


Watch as Vice Ganda surprises his fans, the Parco brothers. The 3 brothers have a rare disease called Hunter Syndrome. Subscribe to the ABS-CBN News channel! - http://bit.ly/TheABSCBNNews...
 

9 0

Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the Philippines, more than 200 Pinoys...
 

7 0

First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, is underway at Emory University.
 

8 0

Autism and Hunter Syndrome | Larsella.C


Hello everyone, My name is Christine and I am the mother of the most whimsical, huggable, kid on earth, Larson.
 

12 0

Will - Hunter Syndrome


Will has Hunter Syndrome.
 

0 0

Early signs and symptoms of Hunter syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable after the first year of life....
 

11 3

Story of a chid who suffered from inherited genetic disorder \


A five years child Shaurya is suffering for rare disease \
 

11 0

Key Features of Hunter syndrome: MPS II Global Webinar - Part 1


Hunter syndrome (MPS II) is a lysosomal storage disorder. The disease is caused by a genetic defect but is also an active process and so the signs and symptoms begin before birth but continue...
 

5 0

Hunter Syndrome Awareness


Finding an underlying cause to your child's long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it'll also be a huge relief when you're able to pin-point...
 

7 0

Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donnell's full report: http://cbsn.ws/1zdkwQM.
 

0 0

Hunter Syndrome - Pathophysiology and Possible New Treatment


Patrice Rioux, MD, PhD, senior vice president of Global Clinical Development at Armagen talks about Hunter syndrome and the compound they have in development to treat both the systemic and...
 

5 0

\


We recently spoke with Marielle, a parent of a child with MPS II (Hunter syndrome). She describes what Hunter syndrome is, her and her husband's initial reaction to their son's diagnosis, a...
 

0 0

Gene Therapy for Hunter Syndrome


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

0 0

Hunter Syndrome


References Burton, B.K., & Giugliani, R. (2012). Diagnosing hunter syndrome in a pediatric practice: practical considerations and common pitfalls. European Journal of Pediatrics, 171(4), pp....
 

0 0

A dad made a heartbreaking video about his dying son in an effort to fund the cure to save his life.


To donate, visit: https://www.gofundme.com/projectalive. SUBSCRIBE ▻ http://sub2.omele.to 'Finn' is used with permission from Christian Schultz and Jon Muedder. Learn more at http://omele.t...
 

4 0

Kids with Hunter Syndrome to perform 'The Nutcracker'


Kaabang-abang na pagtatanghal ang inihahanda ang ABS-CBN Philharmonic Orchestra at ng Philippine Ballet Theatre ngayong papalapit na ang Pasko --- ang \
 

8 0

The progression of Hunter syndrome (Long Version)


Hunter syndrome is a progressive disease, meaning signs and symptoms develop over time. This video outlines the signs and symptoms of Hunter syndrome that may develop during the course of the...
 

8 3

Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

6 0

Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

4 0

Mucopolysaccharidosis


Many thanks to Hassan Jafri for meticulously recording this video. In this video I have explained all the high yield and most important things that you need to remember for three mucopolysaccharid...
 

5 0

HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

0 0

Having a brother with Hunter Syndrome


 

15 0

Hunter Syndrome - Mucopolysaccharidosis II PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

0 0

Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function. While science is advancing, gene...
 

8 0

Additional signs and symptoms of Hunter syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, joint stiffness and limited range...
 

0 0

\


\
 

11 0

Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipetitions.com/petition/treat_hunter_syn...
 

0 0

Save Little Shaurya - Suffering from a life threatening rare disease \


 

15 0

The progression of Hunter syndrome (Short Version)


Hunter syndrome is a progressive disease, meaning signs and symptoms develop over time. This short video outlines the signs and symptoms of Hunter syndrome that may develop during the course...
 

0 0

Hunter syndrome


A view of a hunter kid #cureforhunter.
 

1 0

Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October 2007.
 

0 0

Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a paediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS II. INTSP/C-ANPROM/HS/15/0054.
 




<<< back to Hunter Syndrome main page