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Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the ...
 

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I-Witness (March 05,2012) hunter syndrome


para sa mga gustong tumulong visit \
 

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First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, ...
 

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Mission Possible: Vice Ganda surprises brothers with Hunter Syndrome


Watch as Vice Ganda surprises his fans, the Parco brothers. The 3 brothers have a rare disease called Hunter Syndrome. Subscribe to the ABS-CBN News ...
 

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Having a brother with Hunter Syndrome


 

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Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: ...
 

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HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART ...
 

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Overview of Hunter Syndrome


 

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Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function.
 

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Breaking Barriers Hunter Syndrome Trial


http://breakingbarriershuntertrial.com/ Researchers are conducting a clinical trial of AGT-182, an investigational treatment for people with Hunter Syndrome aka ...
 

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2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

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Diagnosing Hunter syndrome - ENT Doctors May Be the First to Spot MPS II


Dr. David E. Karas, MD, a pediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS II.
 

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hunter syndrome phil.


 

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Will - Hunter Syndrome


Will has Hunter Syndrome.
 

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Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah ...
 

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Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

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MPS-II (Hunter Syndrome) Zwillinge aus Weiden in der Oberpfalz


10.03.2012: Wieder vereint!*** ***2010: In den frühen Morgenstunden des 11.September 2010 schlief Jannic nach grossem und tapferem Kampf für immer ein.
 

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Hunter Syndrome


Low-Incidence Disability Report on Hunter Syndrome Class: EDSP 4063.
 

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Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and ...
 

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Early Signs & Symptoms of Hunter Syndrome (MPS II)


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable ...
 

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What is Hunter Syndrome (MPS II)?


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunter ...
 

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What is Hunter syndrome? Also known as MPS II


This video provides an overview of Hunter syndrome, or mucopolysaccharidosis II (MPS II) -- a serious genetic disorder that primarily affects males. In Hunter ...
 

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Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare ...
 

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hunter syndrome Medium


The information in this video was retrieved from the following sources: American Speech-Language-Hearing Association. (2008).Roles and responsibilities of ...
 

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[KRPIA Patient Video] Hunter Syndrome, MPS II


 

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AGT-182 and Hunter Syndrome


Steven L Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the treatment option AGT-182 that the company is developing for Hunter ...
 

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Additional signs and symptoms of Hunter syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over time. These symptoms may include cardiac/valvular heart disease, short stature ...
 

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Mission Possible: Dream come true


The Parco brothers, Peter John, Vicente, and John Paul, three siblings with Hunter Syndrome, get the opportunity to meet their idol, Vice Ganda. Subscribe to the ...
 

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Understanding Hunter and Hurler Syndrome


Steven L. Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the pathophysiologies of Hunter and Hurler syndromes and how both ...
 

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Funding for Hunter Syndrome on Canada AM


I was interviewed on Canada AM becasue of the interest generated by the video Steve and I made. Thanks to Seamus O'Regan for his interest.
 

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Hunter Syndrome in Chile


 

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Understanding Hunter syndrome (MPS II)


This short video is about Hunter syndrome, or mucopolysaccharidosis II (MPS II), a serious genetic disorder that primarily affects males. It interferes with the ...
 

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Meet Julio and his mom, Sarai, and learn about Hunter Syndrome!


 

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Hunter Syndrome - Jeans for Genes


A revolutionary new treatment has had amazing results on a boy from Somerset who suffers with a rare condition which makes walking difficult. BBC October ...
 

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PSA for Hunter's Syndrome


 

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Hunter syndrome disease progression in adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly ...
 

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Kids with Hunter Syndrome to perform 'The Nutcracker'


Kaabang-abang na pagtatanghal ang inihahanda ang ABS-CBN Philharmonic Orchestra at ng Philippine Ballet Theatre ngayong papalapit na ang Pasko ...
 




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