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First human clinical trial for Hunter syndrome underway at Emory


First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, is underway at Emory University.
 


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What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

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What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme iduronate-2-sulfatase. The deficiency or absence...
 

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What is Hunter Syndrome?


Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very...
 

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Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the Philippines, more than 200 Pinoys...
 

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Story of a chid who suffered from inherited genetic disorder \


A five years child Shaurya is suffering for rare disease \
 

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Gene Therapy for Hunter Syndrome


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

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Key Features of Hunter syndrome: MPS II Global Webinar - Part 1


Hunter syndrome (MPS II) is a lysosomal storage disorder. The disease is caused by a genetic defect but is also an active process and so the signs and symptoms begin before birth but continue...
 

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Hunter Syndrome Awareness


Finding an underlying cause to your child's long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it'll also be a huge relief when you're able to pin-point...
 

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We recently spoke with Marielle, a parent of a child with MPS II (Hunter syndrome). She describes what Hunter syndrome is, her and her husband's initial reaction to their son's diagnosis, a...
 

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Will - Hunter Syndrome


Will has Hunter Syndrome.
 

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hunter syndrome phil.


 

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hunter syndrome


This video is about hunter syndrome.
 

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Mucopolysaccharidosis


Many thanks to Hassan Jafri for meticulously recording this video. In this video I have explained all the high yield and most important things that you need to remember for three mucopolysaccharid...
 

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Hunter Syndrome


References Burton, B.K., & Giugliani, R. (2012). Diagnosing hunter syndrome in a pediatric practice: practical considerations and common pitfalls. European Journal of Pediatrics, 171(4), pp....
 

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Early signs and symptoms of Hunter syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable after the first year of life....
 

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Hunter syndrome (Medical Condition)


Symptoms, risk factors and treatments of Hunter syndrome (Medical Condition) Hunter syndrome, or mucopolysaccharidosis II, is a lysosomal storage disease caused by a deficient enzyme, iduronate-...
 

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Gene Editing Used to Treat US Man With Hunter Syndrome


On www.xtalks.com - To read more: https://xtalks.com/gene-editing-used-to-treat-us-man-with-hunter-syndrome-962/ For more news stories, visit: http://xtalks.com/News Receive weekly news...
 

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Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donnell's full report: http://cbsn.ws/1zdkwQM.
 

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Autism and Hunter Syndrome | Larsella.C


Hello everyone, My name is Christine and I am the mother of the most whimsical, huggable, kid on earth, Larson.
 

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Hunter Syndrome - Pathophysiology and Possible New Treatment


Patrice Rioux, MD, PhD, senior vice president of Global Clinical Development at Armagen talks about Hunter syndrome and the compound they have in development to treat both the systemic and...
 

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Overview of Hunter Syndrome


 

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Mission Possible: Vice Ganda surprises brothers with Hunter Syndrome


Watch as Vice Ganda surprises his fans, the Parco brothers. The 3 brothers have a rare disease called Hunter Syndrome. Subscribe to the ABS-CBN News channel! - http://bit.ly/TheABSCBNNews...
 

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Hunter Syndrome - Mucopolysaccharidosis II PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

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Hunter Syndrome


Low-Incidence Disability Report on Hunter Syndrome Class: EDSP 4063.
 

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Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipetitions.com/petition/treat_hunter_syn...
 

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HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

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2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

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Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

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Hunter syndrome disease progression in adolescence


This short video is about the multi-systemic effects of Hunter Syndrome as symptoms progress into adolescence. The progressive symptoms can profoundly effect the patients life. This video...
 

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Additional signs and symptoms of Hunter syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, joint stiffness and limited range...
 

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Breaking Barriers Hunter Syndrome Trial


http://breakingbarriershuntertrial.com/ Researchers are conducting a clinical trial of AGT-182, an investigational treatment for people with Hunter Syndrome aka mucopolysaccharidosis II or...
 




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