What's on the web on your pursuit, hobbies, interests and worries


<<< back to Hunter Syndrome main page
7 0

Another PGD story: Hunter syndrome


Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donnell's full report: http://cbsn.ws/1zdkwQM.
 


I'm from: United States, VA (edit) and

I find this video ...

very exciting
very interesting
very mediocre
very boring




More Hunter Syndrome videos

0 0

What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

0 0

What is Hunter Syndrome?


Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very...
 

1 2

What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme iduronate-2-sulfatase. The deficiency or absence...
 

7 0

First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, is underway at Emory University.
 

9 0

Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the Philippines, more than 200 Pinoys...
 

11 3

Story of a chid who suffered from inherited genetic disorder \


A five years child Shaurya is suffering for rare disease \
 

8 0

Autism and Hunter Syndrome | Larsella.C


Hello everyone, My name is Christine and I am the mother of the most whimsical, huggable, kid on earth, Larson.
 

12 0

Will - Hunter Syndrome


Will has Hunter Syndrome.
 

5 0

Hunter Syndrome Awareness


Finding an underlying cause to your child's long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it'll also be a huge relief when you're able to pin-point...
 

11 0

Key Features of Hunter syndrome: MPS II Global Webinar - Part 1


Hunter syndrome (MPS II) is a lysosomal storage disorder. The disease is caused by a genetic defect but is also an active process and so the signs and symptoms begin before birth but continue...
 

5 0

\


We recently spoke with Marielle, a parent of a child with MPS II (Hunter syndrome). She describes what Hunter syndrome is, her and her husband's initial reaction to their son's diagnosis, a...
 

11 0

Steve Nash and Simon Ibell on Hunter Syndrome


Steve Nash and Simon Ibell ask that Enzyme Replacement Therapy be funded by the Provincial Ministries of Health. To sign the petition go to: http://www.ipetitions.com/petition/treat_hunter_syn...
 

6 0

Hunter Syndrome


A video I made of these amazing kids with Hunter Syndrome!
 

0 0

Mission Possible: Vice Ganda surprises brothers with Hunter Syndrome


Watch as Vice Ganda surprises his fans, the Parco brothers. The 3 brothers have a rare disease called Hunter Syndrome. Subscribe to the ABS-CBN News channel! - http://bit.ly/TheABSCBNNews...
 

0 0

Hunter Syndrome - Pathophysiology and Possible New Treatment


Patrice Rioux, MD, PhD, senior vice president of Global Clinical Development at Armagen talks about Hunter syndrome and the compound they have in development to treat both the systemic and...
 

0 0

Gene Therapy for Hunter Syndrome


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

0 0

Overview of Hunter Syndrome


 

3 0

Hunter Syndrome


Low-Incidence Disability Report on Hunter Syndrome Class: EDSP 4063.
 

0 0

Early signs and symptoms of Hunter syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable after the first year of life....
 

5 0

HUNTER SYNDROME


VIDEO SLIDESHOW OF BOYS WITH HUNTER SYNDROME!!! LOTS OF LOVE TO ALL OF THE BOYS IN THIS VIDEO AND A SPECIAL PART OF MY HEART GOES TO PEYTON AND HIS FAMILY!!!!!
 

0 0

Hunter Syndrome


References Burton, B.K., & Giugliani, R. (2012). Diagnosing hunter syndrome in a pediatric practice: practical considerations and common pitfalls. European Journal of Pediatrics, 171(4), pp....
 

4 0

Mucopolysaccharidosis


Many thanks to Hassan Jafri for meticulously recording this video. In this video I have explained all the high yield and most important things that you need to remember for three mucopolysaccharid...
 

2 0

hunter syndrome


This video is about hunter syndrome.
 

0 0

2012 Our Journey with Hunter Syndrome


A year in James journey with Hunter Syndrome including his Bone Marrow Transplant at Starship Hospital.
 

5 0

hunter syndrome phil.


 

0 0

Having a brother with Hunter Syndrome


 

0 0

Save Little Shaurya - Suffering from a life threatening rare disease \


 

0 0

Raising Rare Boys - Cure Hunter Syndrome


Hunter Syndrome occurs in 1 in 100000 male births. It's very rare, there is no cure and no treatment that affects the brain and improves cognitive function. While science is advancing, gene...
 

8 0

Hunter Syndrome (MPS II)


Melissa Hogan is founder of Saving Case, a patient advocacy group organized to help raise awareness of Hunter Syndrome and to help empower all rare disease advocates to get involved in the...
 

0 0

Hunter's Syndrome PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

15 0

Hunter Syndrome - Mucopolysaccharidosis II PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

2 0

[KRPIA Patient Video] Hunter Syndrome, MPS II


신약을 통해 새로운 희망을 얻은 그들의 생생한 이야기는 KRPIA 유튜브 채널을 통해 만나실 수 있습니다. #새로운희망을응원합니다 #NewMedicineNewHope캠...
 

0 0

Diagnosing Hunter Syndrome - ENT Doctors May Be Among the First to Spot MPS II


Dr. David E. Karas, MD, a paediatric otolaryngologist at the Yale-New Haven Hospital, discusses the key role ENTs play in the diagnosis of syndromes like MPS II. INTSP/C-ANPROM/HS/15/0054.
 

6 0

Hunter syndrome (Medical Condition)


Symptoms, risk factors and treatments of Hunter syndrome (Medical Condition) Hunter syndrome, or mucopolysaccharidosis II, is a lysosomal storage disease caused by a deficient enzyme, iduronate-...
 




<<< back to Hunter Syndrome main page