What's on the web on your pursuit, hobbies, interests and worries


<<< back to Hunter Syndrome main page
7 0

Another PGD story: Hunter syndrome


Another PGD story: Hunter syndrome


Kendra Lesta tells Norah O'Donnell about losing her son Christopher to a rare disease and why she did PGD to prevent passing it on again. Watch Norah O'Donnell's full report: http://cbsn.ws/1zdkwQM.
 


I'm from: United States, VA (edit) and

I find this video ...

very exciting
very interesting
very mediocre
very boring




More Hunter Syndrome videos

0 0

What Is Hunter Syndrome?


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

1 2

What is Hunter Syndrome?


Hunter syndrome (MPS II) is a hereditary disease. It is a lysosomal storage disorder caused by the deficiency or absence of the lysosomal enzyme iduronate-2-sulfatase. The deficiency or absence...
 

0 0

What is Hunter Syndrome?


Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very...
 

9 0

Meet the siblings who have Hunter's Syndrome


The Hunter's Syndrome is considered as one of the rare diseases. The price needed to cure this disease is estimated to be at half a million pesos. Here in the Philippines, more than 200 Pinoys...
 

11 0

Key Features of Hunter syndrome: MPS II Global Webinar - Part 1


Hunter syndrome (MPS II) is a lysosomal storage disorder. The disease is caused by a genetic defect but is also an active process and so the signs and symptoms begin before birth but continue...
 

7 0

First human clinical trial for Hunter syndrome underway at Emory


A first-in-man clinical trial, testing a newly developed drug for a rare genetic condition called mucopolysaccharidosis type II (MPS II) or Hunter syndrome, is underway at Emory University.
 

11 3

Story of a chid who suffered from inherited genetic disorder \


A five years child Shaurya is suffering for rare disease \
 

0 0

Hunter Syndrome - Mucopolysaccharidosis II PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

0 0

Gene Therapy for Hunter Syndrome


For more information, visit: http://projectalive.org Video Produced by Caravan: http://wearecaravan.tv.
 

8 0

Additional signs and symptoms of Hunter syndrome


This short video shows how Hunter Syndrome signs and symptoms emerge over times. These symptoms may include cardiac/valvular heart disease, short stature, joint stiffness and limited range...
 

5 0

Hunter Syndrome Awareness


Finding an underlying cause to your child's long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it'll also be a huge relief when you're able to pin-point...
 

4 0

Mucopolysaccharidosis


Many thanks to Hassan Jafri for meticulously recording this video. In this video I have explained all the high yield and most important things that you need to remember for three mucopolysaccharid...
 

0 0

Early signs and symptoms of Hunter syndrome


This short video describes the early symptoms of Hunter syndrome (MPS II). Symptoms are generally not apparent at birth, but usually start to become noticeable after the first year of life....
 

5 0

\


We recently spoke with Marielle, a parent of a child with MPS II (Hunter syndrome). She describes what Hunter syndrome is, her and her husband's initial reaction to their son's diagnosis, a...
 

8 0

The progression of Hunter syndrome (Long Version)


Hunter syndrome is a progressive disease, meaning signs and symptoms develop over time. This video outlines the signs and symptoms of Hunter syndrome that may develop during the course of the...
 

0 0

The Balancing Act – Hunter syndrome – Part 1 of 2


Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious rare genetic disorder that primarily affects males. This video features a discussion about the signs and symptoms of Hunter...
 

0 0

Hunter Syndrome


References Burton, B.K., & Giugliani, R. (2012). Diagnosing hunter syndrome in a pediatric practice: practical considerations and common pitfalls. European Journal of Pediatrics, 171(4), pp....
 

0 0

Overview of Hunter Syndrome


 

12 0

Will - Hunter Syndrome


Will has Hunter Syndrome.
 

0 0

Hunter's Syndrome PSA


Created using PowToon -- Free sign up at http://www.powtoon.com/youtube/ -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop...
 

9 0

Gene Editing Used to Treat US Man With Hunter Syndrome


On www.xtalks.com - To read more: https://xtalks.com/gene-editing-used-to-treat-us-man-with-hunter-syndrome-962/ For more news stories, visit: http://xtalks.com/News Receive weekly news...
 

0 0

Saving Case


We created this video in February 2010 to explain Case's symptoms of MPS from birth to diagnosis as well as to give information about Hunter Syndrome and other MPS conditions. This was prior...
 

3 0

Hunter Syndrome


Low-Incidence Disability Report on Hunter Syndrome Class: EDSP 4063.
 

0 0

Mission Possible: Vice Ganda surprises brothers with Hunter Syndrome


Watch as Vice Ganda surprises his fans, the Parco brothers. The 3 brothers have a rare disease called Hunter Syndrome. Subscribe to the ABS-CBN News channel! - http://bit.ly/TheABSCBNNews...
 

0 0

Save Little Shaurya - Suffering from a life threatening rare disease \


 

2 0

hunter syndrome


This video is about hunter syndrome.
 

0 0

Having a brother with Hunter Syndrome


 

0 0

Understanding Hunter and Hurler Syndrome


Steven L. Schoenfeld, MD, vice president, clinical affairs at AmeraGen discusses the pathophysiologies of Hunter and Hurler syndromes and how both lysosomal diseases have central and peripheral...
 

0 0

Detecting and Diagnosing Hunter syndrome: MPS II Global Webinar - Part 3


There is often a delay from when the first symptoms of Hunter syndrome (MPS II) appear to when Hunter syndrome is diagnosed. No single symptom is definitively diagnostic, but if a symptom ignites...
 




<<< back to Hunter Syndrome main page